Register for our in person Public Patient Involvement Engagement event for people living with inherited cardiac conditions and their carers in Northern Ireland. 

Are you caring for someone or living with an inherited cardiac condition in Northern Ireland?  

We are setting up a Northern Ireland Registry for Inherited Cardiac Conditions (NIRICC) to help understand how many people are affected, how the condition affects individuals, learn more about the underlying biology of inherited cardiac conditions, and potentially offer better management to individuals.  

Please join us and share your thoughts on how we can make this registry relevant and efficient. Let us know what you would like to be included in the registry, how you would want your information to be collected and processed, how you wish to be contacted for research studies, and any other comments. 

Come and share your opinions.