Participate in Research Now
The following research projects are currently recruiting participants.
RELATE-CP - Researching Mental Health and Well-being in Young People with Cerebral Palsy
Are you 6-17 years old with cerebral palsy and live in Ireland or Northern Ireland? Researchers want you to tell them about your mental health and well-being.
Participate in the CPASSES and EASED-CP projects
Teams at the Universities of Barcelona, Oslo, Gothenburg, California (San Francisco), and KU Leuven, in conjunction with the clinical and scientific communities, are developing clinical guidelines for the assessment of cognitive functioning and Autism Spectrum Disorder (ASD) in people living with cerebral palsy (CP).
Due to your professional or lived experience, they would like to warmly invite you to collaborate in the first stage of this process by contributing your opinion via this survey for experts or this survey for people living with CP/family. Please, see the flyer for more information.
Note that they aim for these guidelines to begin reshaping and harmonising current practices for populations for which cognitive difficulties and ASD are both potentially common and challenging to assess. Some survey respondents will also be offered the opportunity to join a panel overseeing the second stage of this guideline development.
Do you have a neurological condition? Are you interested in exercising at your local gym? You could help researchers at Ulster University @UlsterHealthSci to develop an exercise referral pathway for adults with neurological conditions. Contact the team at neurophysio@ulster.ac.uk. Do you care for someone with a neurological condition? Are you interested in helping them exercise at their local gym? You could help researchers at Ulster University @UlsterHealthSci to develop an exercise referral pathway. Contact the team at neurophysio@ulster.ac.uk. Researchers at Ulster University @UlsterHealthSci are developing an exercise referral pathway for adults with neurological conditions. If you, or someone you know, is interested in helping with this research please email neurophysio@ulster.ac.uk. You can scan the QR code on the right to watch a video explaining this study.
A team at Queen’s University Belfast would like to invite you to take part in research called ‘Social participation and quality of life in adults with cerebral palsy’. The team are interested in finding out about the lives of adults with CP so that support and access to appropriate healthcare, employment, education and leisure activities can be improved in adulthood. Participants will be asked to fill in a survey, either online or in person with Claire, and will be given a £10 gift voucher as a token of thanks. The team are looking for individuals with Cerebral Palsy and without and parents or carers of individuals with CP are also welcome to take part on behalf of their loved one. If you would like to hear more or have any questions, you can contact Claire by email at ccooper12@qub.ac.uk
Participate at Queen's
Are you aged 14-21 years with cerebral palsy (CP) and able to walk? Would you like to help make two new research studies for children and young people with CP fun and interesting to take part in? Are you the parent carer of a walking child or young person with cerebral palsy? Are you interested in helping improve outcomes for children and young people with cerebral palsy? Would you like to share your experience and interest to contribute to two new research studies for children and young people with cerebral palsy? To find out more on trials for the Young People Advisory Group or the Parent Advisory group please email morag.andrew@newcastle.ac.uk
Researchers at Cardiff University are conducting an online study with parent’s/guardians caring for children with dystonia in the UK aged 0-18 years. They hope to look at experiences regarding the support they receive and to gain a better insight into the lives of carers. For more information please do not hesitate to contact the main researcher Anne on haddicka@cardiff.ac.uk
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