Ethics of Online Research
The University is interested in the protection of the rights, dignity, health, safety, wellbeing and privacy of research participants. To ensure the protection of participants whilst using online environments and digital platforms, it is important to analyse and conduct a risk assessment on the virtual space in which the research is being conducted, as you would the physical space of a research site.
Reasonable steps should be taken to ensure that research participants are safe and that the risk associated with using online/digital platforms has been clearly communicated. The risks might include the ways in which many digital platforms and apps gather our personal information (‘data’) and the degree to which the participants’ rights could be compromised. Whilst privacy statements are common to communicate policies on accessing online platforms, these are often quickly agreed to in pursuit of access. Researchers should do what they can to obtain fully informed consent about these virtual environments, particularly as we are the ‘data controllers’, while platforms are ‘data processors’ of the ‘data’.
For example, when scraping/mining data from social media, researchers have to consider and inform participants about:
- whether the available data is also public and whether it is fair to use it in research;
- risk of harm through tracing or exposing the social media user’s identity and profile;
- degrees of anonymity. Anonymised data sets may make individuals identifiable if they contain enough personal information
Publicly accessible data does not mean that it can be processed by anyone for any purpose. When assessing whether data is private or open for use or, keep in mind the online environment in which it is posted and the reasonable expectations of privacy which the user may have had.
The University supports certain digital platforms, please contact the University’s Data Compliance Unit info.compliance@qub.ac.uk for the most up to date information regarding University supported online/digital platforms.
In some circumstances it may not be possible to use the University supported platforms. If this is the case, then please review the platform privacy statement and data collection policy, so that decisions about platform choices are informed. It is important that the University knows what information is being collected about users and participants before inviting them into a digital space. For example: look for any indicators that personal information will be collected, how it will be used, with whom it will be shared, and how/ where it is stored.
If you use a platform for your research that is not provided by the University, such as Zoom, Facebook, or WhatsApp, please be clear about the need to communicate, in accessible and digestible terms, the data implications of bringing people into these spaces. Check the terms and conditions for privacy, anonymity, data protection, and so on.
The increased reliance on internet platforms and applications to gather research data and/or recruit research subjects means researchers will increasingly confront ‘terms of use’ that determine the conditions under which such research activities can take place, if at all. It is important to consider whether or not the platforms comply with legal considerations, such as GDPR, in the country where the data is being collected from the participant and if it crosses international boundaries when processed.
Research in the Social Sciences and Humanities is highly diverse. The contexts in which such research will be conducted will likewise be diverse, as will the methods employed. The following are recognised norms of research ethics which can be used as a framework to guide the research process in online research environments (please also refer to SREC policies on research ethics, this outline is based on Internet Research Ethical Guidelines Association of Internet Researchers. Refer to this for more detail.)
It is important to check what Legal Aspects such as GDPR; Terms and Conditions of each platform are, particularly as they may change as the technology advances, and in response to legal requirements.
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What do I need to keep in mind?
There are four key considerations to think about when conducting research online:
- Venues and Platforms: User requirements under the Terms of Service of online platforms such as Facebook and Instagram, Diaspora, Pinterest, Snapchat,
- Cultural Dimensions: Internet-facilitated communication will almost always cross multiple cultural boundaries, thereby implicating multiple local cultural norms, practices, beliefs, etc., both in terms of local uses, approaches, etc. and local research ethics.
- Involved subjects: ‘Vulnerable groups’ – women, minors people with disabilities, refugees; assessing downstream harms or effects; politically sensitive research; special emotional states such as trauma and grief; LGBTQi stigmatisation etc. In online research it is more difficult to assess the risk of participants coming to harm because fewer studies have been conducted from which researchers can learn, and it is harder to judge individuals’ reactions to the research.
- Ethical Conceptual Frameworks: Frameworks which address foundational ethical norms and commitments such as: privacy, anonymity, trust, accountability, responsibility, freedom.
- Procedures for Data Acquisition, Analysis, Storage, Dissemination
In addition to the requirements set by Research Ethics Committees and professional bodies, there are also laws regarding privacy and data protection that govern research in different countries. In Internet research, however, the institutional and legal context may be uncertain because research participants may be online in any geographical context. The global reach of the Internet may entail that researchers take heed of contexts which go beyond their own jurisdictions.
It is necessary to think ‘globally’, or ‘glocally’ – local and global – as it is increasingly described, because values such as privacy may be culturally specific and what is considered an appropriate balance between privacy and anonymity. Some common considerations are:
- How are data being managed, stored, and represented?
- What method is being used to secure and manage potentially sensitive data?
- What unanticipated breaches might occur during or after the collection and storage of data or the production of reports? (For example, if an audience member recorded and posted sensitive material presented during an in-house research presentation, what harms might result?)
- If the researcher is required to deposit research data into a repository for future use by other researchers (or wishes to do so), what potential risks might arise? What steps should be taken to ensure adequate anonymity of data or to unlink this data from individuals?
- What are the potential ethical consequences of stripping data of personally identifiable information?
- How might the removal of selected information from a dataset distort it such that it no longer represents what it was intended to represent?
- If future technologies (such as automated textual analysis or facial recognition software) make it impossible to strip personally identifiable information from data sets in repositories, what potential risks might arise for individuals? Can this be addressed by the original researcher? If so, how? How will this impact subsequent researchers and their data management? (p.19, at: https://aoir.org/reports/ethics3.pdf)
- SREC's advice and further guidance
SREC therefore encourages caution for all use of remote data collection: where you ask your participant to communicate using an online/ digital/ technology mediated platform or tools, there are additional elements to consider. Think carefully about what you can do to meet the principles of transparency and privacy in your choice of platform:
- What is the approach of that platform/ third party to privacy and protections? Discuss these with your supervisor/ team and be sure to fully inform yourself. Where you require a participant to engage with a platform, it should be named and risks identified;
- One approach would be to (a) explicitly signal that as a researcher you are the ‘data controller’ and as such will endeavour to treat the data they provide for the project in the manner outlined within the information sheet, but that they should be aware that this does not extend to what data is collected by that platform as the ‘data processor’; (b) include a link to the privacy policy of the platform if you have chosen one specifically, and/or offering to be flexible to platforms which participants have chosen to provide permissions to in the past.
Look here for more wide-ranging resources and publications about online research and ethics.
There is an excellent collection of resources on methods of online research, particularly useful during the pandemic
A range of options and opinions are available under the following Ethical Guidelines:
- BERA;
- The Canadian Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans;
- The [Norwegian] National Committee for Research Ethics in the Social Sciences and the Humanities;
- Internet Research: Ethical Guidelines Association of Internet Researchers. etc. (see link above);
- European Commission: Ethics in Social Sciences and Humanities 2018
It is important to consider information governance and data privacy when using MS Teams or any other remote conferencing tools. Please refer to the University’s Data Protection and Information Security for further details.
Due to the emerging use of remote conferencing and communication tools for teaching, training and research activities, the Information Compliance Unit has prepared some further guidance to help ensure adherence to the Data Protection Act 2018 (DPA 2018) and the General Data Protection Regulation (GDPR).
Please remember that the use of Zoom (www.zoom.us) is restricted.
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What to Consider When Using MS Teams
Are all participants aware of their obligations under the appropriate policies (see Data protection policy, Data Security Policy and Policy on Recording of Educational Materials); this will ensure that anyone involved is aware of what they can and cannot do during the event.
- When conducting academic research through MS Teams, it will be important to include in your ‘Informed Consent’ and Participant Information Sheet details of what any restrictions may be. We have summarised some of these below:
- Recording of the session via MS Teams or any other software or device is not allowed.
- Capturing images of participants is forbidden.
- That the participants understand that names will be visible to all other users (use pseudonyms where possible).
- Participants must not document or share information outside the session.
- Researchers should complete a data protection impact assessment (DPIA) that will address the risks and mitigations required to ensure the research is conducted in compliance with data protection legislation.
- When providing training or educational activities through MS Teams, please consider the following prior to commencement.
- Ensure that all participants are aware of and understand the policies which govern the use of MS Teams and materials shared.
- Make participants aware that recordings are prohibited unless otherwise specified by the host.
- All materials and any recordings are the property of Queen’s University Belfast and/or the host.
- If you are discussing sensitive subject matter, ensure that all participants are aware that if they provide details about themselves which could be deemed sensitive personal data this has now been provided in a public forum and may be exempt of some of the protections of afforded under data protection legislation.
- Where you are sharing files with personal data, please consider if MS Teams or Canvas are appropriate mediums and whether additional protections can be applied, such as password protection.
- Storage, retention, and deletion
It is also important to consider what you have recorded during the session, including any Chat Box discussions, conversations or other. This could potentially hold personal/sensitive data and should be reviewed and stored or deleted in line with your agreed retention and deletion timeframes.
Please ensure that if you are recording the session or if you have taken notes or similar, which contain personal data, this must be stored as appropriate on secure, encrypted QUB devices.
- Sharing and transferring files
It is important to remember that any files and other material that are made available to participants via MS Teams will then be their responsibility to comply with the DPA 2018, where those files or other materials contain identifiable personal data. Files can be safely and easily shared via MS Teams, as this platform supports end-to-end encryption and is considered a secure transfer.
If you wish to enquire as to who has attended, what they have viewed and whether or not anyone has recorded the sessions without permission, you may contact IS and request ticket support to view the session’s statistics. Helen Browne has agreed to assist with these issues or queries and has asked that formal tickets are raised to ensure that they are addressed in her absence.
For any further support or guidance in relation to the data privacy implications of using MS Teams in an educational or research setting, please contact Information Compliance – info.compliance@qub.ac.uk