LOCATION

Riddle Hall, Queen’s University

Address 185 Stranmillis Road, Belfast BT9 5EE

 

DATE

11^th November, 2016

 

STARTS

9am 

 

This conference aims to address areas of interest for professionals delivering health services in the community for children and young people with a diagnosis of CP. It includes talks by local and national experts. The opening speaker will be Mrs Fionnuala McAndrew, Director of Social Care and Children, Health and Social Care Board. Dr Claire Lundy and her team, Dr Brona McDowell, Julia Maskery and Tina Weston, will present the work they have carried out to set up and delivery a Regional Tertiary Neurodisability service. Sheila McNeill will discuss the development of Regional Physiotherapy Care Pathway in Northern Ireland. Local Community Paediatricians will present results from clinical audits they have conducted with the support of the Northern Ireland CP Register. There will also be national experts with Dr Neil Wimalasundera (consultant in the Neurodisability department in Great Ormond Street Hospital), who will be talking about eating and drinking difficulties in Neurodisability; Dr Karen Horridge ( Disability Paediatrician at Sunderland Health Care NHS Foundation and Chair of the British Academy of Childhood Disability) will discuss “Disability Matters”, an innovative suite of free resources to support those who work, volunteer or engage with disabled children and young people and their families. Finally, Professor Allan Colver (Community Child Health and Strategic Research Advisor at Newcastle University, Honorary Consultant Paediatrician at Northumbria Health Care NHS Foundation Trust) will present results from the Transition study, a project focused how health services can best contribute to facilitating successful transition of young people with complex health needs from childhood to adulthood.

 

ORGANISER NAME Northern Ireland Cerebral Palsy Register and the British Association for Community Child Health

The Northern Ireland CP Register (NICPR) is a confidential record of children with CP in Northern Ireland. The NICPR is part of the School of Nursing and Midwifery, Queen's University Belfast and funded by the Public Health Agency (NI). The overall aim of the NICPR is to establish a systematic approach to the surveillance of CP in the Northern Ireland population and to support research into the condition. The NICPR collects patient information and it is responsible for the production of reports on CP incidence, prevalence and survival in Northern Ireland and provides evidence to help inform decision making about services such as community paediatric services, orthopaedic and physiotherapy services to name a few examples. The programme of research includes investigating the aetiology of the condition; clinical aspects of CP and health and social care services for children and young people and their families. 

The British Association for Community Child Health exists to promote and protect the good health of children and their families in their communities. It achieves this through enhancing training and working practices of all those working with children and their families in their communities; encouraging greater collaboration with other disciplines, agencies and professional bodies concerned with the health of children and their families; promoting research related to the health of children and their families and disseminating the useful results; and serving as an advocate for children and their families through professional, academic and other channels.

 

REGISTRATION

Registration fee £70 (Consultants); £50 (Trainees); £30 (nurses, AHP). If academics what to register the fee will also be £30 (they will mostly be nurses and/or AHP). Payment online using this link - https://knock.qub.ac.uk/ecommerce/cpip/index.php

 

INFORMATION LEAFLET

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